About: Lori

My name is Lori. I have been married to my wonderful husband Brian for almost 19 years. Almost 10 yrs after being married, we were finally blessed with the greatest gift, our son Brandon. Brandon was born at 31 weeks gestation and diagnosed with Tracheoesophageal Fistula and Esophageal Artesia, Type C w/distal fistula, as well as severe Tracheomalacia. TEF/EA is a rare birth defect that effects 1 in 3,000-5,000 infants born in the US and could cause other birth defects to form in that infant that effect his/her very life. As a family with a child affected with this birth defect, we felt compelled to learn more, advocate and raise awareness for a birth defect not widely known or publicized. With support, assistance and feedback from many other EA families we created "Bridging the Gap of EA/TEF" and online Facebook support forum for families of children born with Tracheoesophageal Fistula and Esophageal Artesia.

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